Anencephaly is a neural tube defect that hits 1 in 5000 pregnancies, and
until very recently, such babies were referred to as ‘monsters’ as they are
born without some parts of the brain and skull. If you bother to Google images
on it, you won’t get very pretty pictures of newborn babes; that description probably isn’t
too far off for many of our imagination.
It took us a week to pray, come to terms, and deliberate on the next
step. This was not a medically viable pregnancy, and the baby will either be
stillborn or not survive very long after birth. It sounded very familiar
to a prognosis I once received for T, except that in this case it was without
doubt. We were strongly inclined towards carrying the baby to term (we probably
could still land our hands on the Jubilee gift package and special birth
certificate) but at the end of the day, we chose the easier way out.
I’m not proud of our decision; if I could have done it better, I would
carry the baby to term. But knowing and waiting for a birth to die, knowing
that I will eventually come home empty-handed was something I was not sure if I
would be ready for. I have been asked if I was angry with God; from a
strong-willed and difficult baby J to the next pregnancy with no heartbeat, then
a challenging one with T, and now this. Anencephaly, anencephaly. What are the
odds that I would get acquainted with this word? 1 in 5000 like the probability
of it happening? Bearing a baby who meets death upon birth? Huh? Who, me? Does God deem me capable of such strength and faith that He throws me spanner after spanner?
"God, I'm ANGRY that I'll never see Luca smile for the first time, or hear her say 'mama,' or ride a bike, or fall in love! I'm FURIOUS I'll never get to take her to get a pedicure, or watch her face as she sees the ocean for the first time, or hold her in my arms again and kiss her soft skin. I KNOW she's in a better place, BUT I DON'T CARE! I STILL WANT HER BACK!"
“I still want her back. And I always will. And that's ok.”
Yes, I still want my little one back, and I always will, and yes, it’s okay
to feel that way. I truly, truly do not understand why He makes me go through such grief and pain, but I know my God is greater than all of these. “For my
thoughts are not your thoughts, neither are your ways my ways, saith the Lord.
For as the heavens are higher than the earth, so are my ways higher than your
ways, and my thoughts higher than your thoughts.” Isaiah 55:8-9
Honestly, to be ‘hurt’ by a God who loves me so much that He is willing
for His Son to bear my sins and die for me, I have no words to describe
my pain. But I know that while I carried my grief and burdens, He
carried me. Without Him, all my trials and tribulations are random and
meaningless. It is only in Him I know with surety that in spite of
everything and anything He throws in my path, I can look to Him for
comfort and strength, for He knows EXACTLY how much tears I have shed. And I will one day, reunite with my babies in heaven. “Thou tellest my wanderings: put thou my tears into thy bottle: are they not in thy book?” Psalm 56:8
Are your trials random and meaningless? It is my prayer that all of us have the Comforter with us and in us.
PS: We are still in time for a Jubilee baby, haha, if the Lord be willing. Pray with us!
Are your trials random and meaningless? It is my prayer that all of us have the Comforter with us and in us.
PS: We are still in time for a Jubilee baby, haha, if the Lord be willing. Pray with us!
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